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Monday, 15 August 2011 17:51

Thoughts From the Middle of the Night

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When my son Evan was born and I was told he had Down syndrome, I did not cry for a long time.  Then, as I was waiting for my daughter to visit us in the hospital, I saw a girl a few years older with her little brother walking hand in hand to the viewing window of the nursery, and I could not hold my tears back.  I knew that my daughter would never walk her little brother that way.  I knew he would never experience the small pleasures of life I always took for granted.  In those minutes, my heart was broken, and I was overcome with sadness for both my children.

Tuesday, 16 August 2011 16:11

Welcome to Holland

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I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide- books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.