Childhood Letter of Introduction

Thank you for visiting this section of our website. The information provided in this section will likely provide you with up-to-date facts about Down syndrome. We are fortunate to have an organization right here in the Capital District that provides information and support to parents, professionals and individuals who seek information on issues about Down syndrome.

The Centre du syndrome de Down (DSAHRC) is a not-for-profit organization with a Board of Directors, a professional staff, and families and professionals committed to increasing opportunities for individuals with Down syndrome. The purpose of DSAHRC is to enlighten and encourage the broader community to recognize the individuality, uniqueness, and capabilities of individuals with Down syndrome, and to reflect the hopes and dreams of those individuals and their families.

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The IEP Toolkit


The special education system can be confusing, frustrating, and overwhelming. The Individualized Educational Plan (IEP) is the written document that outlines your child's specific educational program. We know a strong IEP is necessary for our child's individual needs to be met. Yet is is common for us to feel insecure and unprepared during our child's IEP meeting. Surrounded by teachers, administrators, and special education personnel, our voice can get lost. This toolkit was written to help you find your voice.

As family members of a child with Down syndrome, we come to IEP meetings with love for our child and a commitment to his or her education. We must also come with a strong understanding of the IEP itself, detailed information about our child's specific needs, and an understanding of appropriate goals. This IEP Toolkit is designed to help you gather the necessary information. Focused preparation is essential to the development od an effective education plan, and a strong IEP leads to improved educational success for your child.

Language Guidelines

The correct name of this diagnosis is Down syndrome. There is no apostrophe (Down). The “s” in syndrome is NOT capitalized (syndrome).
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