Expectant Parent Letter of Introduction

You are likely reading this section of our website, because you or a loved one have been informed that the baby you are carrying has, or may have, Down syndrome (also known as Trisomy 21).

Any parent who has been through this experience knows firsthand how confusing and difficult this time can be. Parents may feel that not only has their dream been shattered, they are also suddenly thrown into the position of considering some very difficult and heart-wrenching decisions.

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New Parent Letter of Introduction

As parents who have experienced the birth of a child with Down syndrome, we know how difficult this time can be. We are familiar with the many feelings and questions you may have. We hope that the materials in this section of our website, and the suggestions that follow, will help you.

We suggest you talk to your family and friends as openly and simply as possible. This will help them to understand and be comfortable with you and your baby. We found that other parents can provide you with good information and support. Many of your concerns can be put into perspective by seeing them and how they have adjusted to this situation.

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Tuesday, 16 August 2011 12:11

Welcome to Holland

Written by  Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide- books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome To Holland". "Holland???" you say, "What do you mean "Holland"??? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy"

But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around…and you begin to notice that Holland has windmills…Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy…and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes that's where I was supposed to go. That's what I had planned". And the pain of that will never, ever, ever, ever go away…because the loss of that dream is a very significant loss.

But…if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things…about Holland.

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