Adult Letter of Introduction

Thank you for visiting this section of our website. The information provided in this section will likely provide you with up-to-date facts about Down syndrome. We are fortunate to have the Down Syndrome Aim High Resource Center right here in the Capital District area to provide information and support to parents, professionals and individuals who seek information on issues about Down syndrome.

The Down Syndrome Aim High Resource Center (DSAHRC) is a nonprofit organization with a Board of Directors, a professional staff, and families and professionals committed to increasing opportunities for individuals with Down syndrome. The purpose of DSAHRC is to enlighten and encourage the broader community to recognize the individuality, uniqueness, and capabilities of individuals with Down syndrome, and to reflect the hopes and dreams of those individuals and their families.

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Tuesday, 20 December 2011 23:42

Down Syndrome Health Care Guidelines: Adulthood

(Based on 1999 Down Syndrome Health Care Guidelines) Adulthood
  • TSH and T4-Thyroid Function Test (annual).
  • Auditory testing (every 2 years).
  • Cervical spine x-rays (as needed for sports); check for atlanto-axial dislocation.
  • Ophthalmologic exam, looking especially for keratoconus & cataracts (every 2 years).
  • Clinical evaluation of the heart to rule out mitral/aortic valve problems.
  • Baseline Mammography (40 years; follow up every other year until 50, then annual).
  • Pap smear and pelvic exam (every 1-3 yrs. after first intercourse). If not sexually active, single finger bimanual exam with finger-directed cytology exam. If unable to perform, screen pelvic ultrasound (every 2-3 years). Breast exam (annually).
  • General physical/neurological exam. Routine adult care.
  • Clinical evaluation for sleep apnea.
  • Low calorie, high-fiber diet. Regular exercise. Monitor for obesity.
  • Health, abuse-prevention and sexuality education. Smoking, drug and alcohol education.
  • Clinical evaluation of functional abilities (consider accelerated aging); monitor loss of independent living skills.
  • Neurological referral for early symptoms of dementia: decline in function, memory loss, ataxia, seizures and incontinence of urine and/or stool.
  • Monitor for behaviour/emotional/mental health. Psych referral (as needed).
  • Continue speech and language therapy (as indicated).

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