Adult Packets
What is the Self-Advocates Group?
The Self-Advocates Group is for individuals who have Down syndrome, ages 16 and older. The group meets at various times throughout the year and holds meetings that are educational and recreational in nature.
The Self-Advocates Group is chaired by Rose Hargrave, Brie Nobis and Patrick Morgan, all of whom serve on the DSAHRC Board of Directors. Brie and Patrick are themselves Self-Advocates.
How Can I Join the Self-Advocates Group?
You can contact
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,
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or
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to get on the email list for the group. You can also call the DSAHRC at (518) 438-1113 for more information.
And keep checking the website to see what exciting activities are planned next!
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| Sexuality in Down Syndrome |
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By: Dr. William Schwab, MD
Human sexuality encompasses an individual's self-esteem, interpersonal relationships and social experiences relating to dating, marriage and the physical aspects of sex. Sex education, appropriate for the developmental level and intellectual attainment of individuals with Down syndrome, helps in engendering healthy sexuality, preventing unwanted pregnancy and diseases and in alleviating other problems related to sexual function.
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Position Statement on Self-Determination For People with Down Syndrome
By the National Down Syndrome Congress and the National Down Syndrome Society
The self-determination movement makes it possible for people with Down syndrome to have greater control over all aspects of their lives.
Self-determination is built on the core principles of freedom, authority, support and responsibility for all people with disabilities:
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| Life Planning and Down Syndrome |
Life Planning and Down Syndrome
By: Barton Stevens, ChLAP
Rapid advances in clinical treatment and greater medical attention to people with Down syndrome during the 20th century have increased the life expectancy of individuals with Down syndrome. As many as 80 percent of adults with this genetic condition live to age 55 and beyond. This new longevity needs to be incorporated into lifetime planning when a child is born. The law assumes that people over the age of 18 are competent to manage their own affairs regardless of disabilities, and parents are no longer considered legal guardians after this point. If protective provisions are not in place, the courts will make important decisions. Physical, social, financial and legal issues must be considered, as well as siblings and service agencies. A well-made life plan is essential for long-term quality life for your loved one with Down syndrome.
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Does Parenting Ever End?
By: Dorothy Robison, Marty Wyngaarden Krauss, Marsha Mailick Seltzer
Parents of children with Down syndrome commonly ask about the future: "What will life be like for my child when he is grown? Will it be possible for my child to live independently or semi-independently? How will I, as a parent, make the best decisions regarding how to support my child as an adult? What will my life be like?" In the early years, as their child participates in early intervention programs, parents begin to acquire a knowledge base about their child's needs and the services required to enhance their child's development. |
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| Alzheimer's Disease and Down Syndrome |
Alzheimer’s Disease and Down Syndrome
By: Dr. Ira Lott, Professor of Pediatrics University of California at Irvine
Alzheimer's Disease, a degenerative neurological disorder characterized by progressive memory loss, personality deterioration and loss of functional motor capabilities, is far more common in individuals with Down syndrome than the general population. However, not all individuals with Down syndrome will develop Alzheimer's disease, and even those showing Alzheimer's-type symptoms may not have Alzheimer's disease since other conditions can mimic the symptoms.
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