Centre du syndrome de Down - Childhood Packet

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Make a donation to the Centre du syndrome de Down . All donations are used to help the resource center.

Calendar of Events

October

Tri'd and True Friends (Saratoga)
October 16, 2011
Staff Meeting
October 20, 2011
10th Annual Autism Conference (Albany)
October 21, 2011

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Childhood Packet

Childhood Letter of Introduction

Thank you for requesting information on Down syndrome. We are fortunate to have an organization right here in the Capital District area that provides information and support to parents, professionals and individuals who seek information on issues about Down syndrome.
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Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this……..

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide- books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

Thoughts From the Middle of the Night

By Pam Wilson , SE of Seattle WA

When my son Evan was born and I was told he had Down syndrome, I did not cry for a long time. Then, as I was waiting for my daughter to visit us in the hospital, I saw a girl a few years older with her little brother walking hand in hand to the viewing window of the nursery, and I could not hold my tears back. I knew that my daughter would never walk her little brother that way. I knew he would never experience the small pleasures of life I always took for granted. In those minutes, my heart was broken, and I was overcome with sadness for both my children.

Language Guidelines

The correct name of this diagnosis is Down syndrome. There is no apostrophe (Down). The “s” in syndrome is NOT capitalized (syndrome).

An individual with Down syndrome is an individual first and foremost. The emphasis should be on the person, not the disability. Down syndrome is just one of the many words that can be used to describe a person. Do NOT say, “That child is a Downs”. A child with Down syndrome, an adult with Down syndrome, or a person with Down syndrome is a more appropriate way to discuss a person with this condition.

Health Care Guidelines Toddlers and Children

Based on 1999 Down Syndrome Health Care Guidelines*

Health Guidelines for Toddlers and Children with Down Syndrome

Health Care Guidelines for Adolescents with Down Syndrome

Based on 1999 Down Syndrome Health Care Guidelines*

Health Guidelines for Adolescents with Down Syndrome

Adolescence (12-18 Years)

STRIDE

Sports & Therapeutic Recreation Instruction/& Developmental Education (STRIDE)
Recreation for Challenged Children

STRIDE's Mission: STRIDE is a not-for-profit, 100% volunteer organization, dedicated to enriching the lives of children with disabilities, by offering sports and recreation opportunities. Challenging people, potential, and possibilities.

To volunteer, participate or to become a sponsor - please contact:
STRIDE, PO Box 778, Rensselaer, NY 12144
email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Phone: (518) 598-1279
Fax:(518) 286-3201

STRIDE is a multi-disciplinary, educational organization specializing in therapeutic recreation-related services for individuals with disabilities. STRIDE's primary efforts focus on directing and providing enriching, recreational opportunities for individuals with disabilities or special needs. Programs are designed to provide successful, fun experiences in athletics or recreational endeavors, as a means to develop a positive self-image and confidence. STRIDE has received many achievement awards because of this work.