Welcome to the Education page

All individuals with Down syndrome are lifelong learners just like every one of us.

It is very important to presume competency and have high expectations when educating individuals with Down syndrome. Research has shown that effective academic interventions and inclusive education are cornerstones of effective education plans for individuals with Down syndrome so they can attain their educational goals, be gainfully employed and be fully contributing citizens in the community.

Our services, here at the Down Syndrome Aim High Resource Center are devoted to helping individuals with Down syndrome get access to appropriate education, from birth to adulthood, so that they can reach their maximum potential.

Friday, 11 December 2015 19:10

Sensory Strategies for the Holidays

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Sensory Strategies for the Holidays

Joan M. Marini, OTR/L                    This email address is being protected from spambots. You need JavaScript enabled to view it.                           Cell- (518) 461-0052

 

The holiday season is full of new activities, schedule changes and disruptions in routines, which often causes the whole family to feel stressed. These changes and disruptions in routine can affect children with sensory processing concerns and challenges to a greater extent than the rest of the family. As we juggle our schedules to make the holidays happy, it is important to make sure our “sensory kids” are having fun as well.

Some holiday pitfalls include:

  • extra shopping trips and increased time at the mall or grocery store
  • bright lights and decorations everywhere
  • fragile decorations throughout the house; environments that are not “child-friendly”
  • crowds in public and/or more people in your home resulting in more accidental bumps and brushing against or accidental touching as you move through the environment
  • more noises in the environment
  • more smells (food, decorations, people wearing perfume, candles, etc.)
  • temperature changes – hot stores, cold outside, warm or cold car
  • unfamiliar environments (visiting relatives or friends)
  • unfamiliar people (relatives, friends, other children, strangers in public)
  • busy, stressed out adults
  • disruptions in routines
  • extra excitement

Here are some ideas to reduce stress and anxiety and make the season a happy one for everyone:

  • Increasing awareness of potential stressful environments and activities can assist in making the appropriate preparations or changes to the environment or activity to increase the chances of fun and reduce the chances of meltdowns.
  • Planning ahead can reduce stress for everyone. Before leaving home, know the intended plan, anticipate pitfalls, have strategies in place and as appropriate, inform your child of what to expect.
  • Novel sensory environments and unexpected transitions can be difficult. Provide your child with pre-sets, so they know what to expect. Watch for signs of stress so you can change the plan as needed.
  • Have a “Safe Space” designated where your child and you, if needed, can go if they are having a hard time. This space ideally is quiet, dimly lit and has comfort toys or items available for your child. Try to retreat to this space before your child has a meltdown by keeping a close eye out for signs of stress.
  • If you already have a sensory diet in place, make sure you use those strategies prior to a stressful situation and frequently during the situation to prevent over stimulation and possible meltdowns. Remember that big hugs, back rubs and carrying heavy toys or objects are always great ways to keep the child’s sensory system in check.
  • Try shopping at single stores rather than the malls and go at off times so the crowds and noise will be reduced (early am/dinner time). Some children benefit from headphones, wide brimmed hats and/or sunglasses to reduce the overstimulation of sights and sounds.
  • Skip events that are guaranteed to cause upset for your child such as a picture with Santa. You may need to settle for a picture by a sparkling tree instead.
  • Place a painters tape or masking tape line on the floor around the tree or other decorations to provide a “Do Not Cross” visual boundary line. This will prevent the child from getting too close to the tree, candles or other decorations that could break or injure them.
  • Maintain as many daily routines as possible. The more consistently you maintain daily routines the more likely the child’s behavior will be consistent. Morning and bedtime routines are the most important to maintain. For children who nap, try as much as possible to maintain the naptime routine as well. If the child is upset about going to bed, just remember, they will be over it by morning. If they stay up, however, they will most likely be irritable the next day and it may disrupt the routines for a few days.
  • Try to maintain the child’s typical diet, mealtime routines and bath time routines.
  • Consider being the host of family gatherings. Although it may mean more work for you, children are always more comfortable at their own home. They know where things are, they know the rules and can find a “safe” place to go if they become overwhelmed. Additionally, your home is already “child-proofed”, so you can be more relaxed, which will help your child be more relaxed.
  • Consider keeping all snacks or foods on a large table rather than scattered around the room. Smaller tables are more likely to be bumped into causing food spills and messes. Additionally, foods that you do not want your child to have will be out of reach.
  • Make a list of any food limitations or allergies your child has and post this in a prominent place such as the refrigerator or buffet table. Make sure guests and relatives see it. Most visitors will understand and respect the list.
  • If you have to go to new or unfamiliar environment (e.g. relative or friend’s house), try to enter and leave the space separately from the larger crowd. Upon arrival, let your child move to a quiet area or a pre-designated “Safe Space” until they feel comfortable entering the larger group. This can be used for a break as well so that your child can regroup.
  • Never force a child to give or receive hugs and kisses. Although these signs of affection are welcome by those with a functional sensory system, it can be very overwhelming for sensory challenged children to participate in these activities. Remind well-meaning friends and relatives that your child loves them but just can’t show it in that way. A glance, wave or smile should be praised as an appropriate way to engage.
  • Take turns opening presents to reduce the commotion and over excitement. Too many new toys at once can be very over-whelming. Consider helping your child pick two new things to play with today and put the others out of sight until later or tomorrow.
  • Find the time to look at the toys and games given to your child before the child opens it to play. Make sure they are within the age recommendations and within your child’s skill level. If not, put away until they are ready to play with them.
  • New toys mean new learning for your child. They usually need quick success and see the toys potential before they give it their approval. Spend time helping your child play with the toys and experiment with different ways to play. Teaching how to use a toy can prevent the toy from accidentally getting broken.
  • Try to keep toys organized by placing in age appropriate containers (bins or cloth bags for smaller children and zip lock bags for older children). This will help keep the pieces together.  
  • Have an Exit Strategy. No matter how many strategies you have in place, things may become overwhelming for your child. When that happens, it is time to leave. Don’t wait until the child is on the brink of a meltdown. Have a reasonable exit strategy and be ready to use it when the time comes. If your child is verbal and can give you a signal that they need to leave, set up a signal that your child can use. When you see your child needs to leave, leave. Don’t make the good byes so long that the child melts down on the way out the door. Explain ahead of time (pre-planning) to your friends and relatives that you may have to leave suddenly and if that happens, you will call them later or the next day to thank them. You may need to consider driving to events separately from your spouse or other children or arranging for the rest of the family to get a ride home so that the whole family does not need to leave.
  • Remember that the Holidays are supposed to be about family and fun. Eliminate those things that create too much stress for your family and enjoy those things that the whole family can participate in.  
Monday, 09 April 2012 14:05

Board of Directors Slate

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The Nominating Committee is pleased to announce the slate of the 2012-2013 Board of Directors for the Down Syndrome Aim High Resource Center

Board of Directors for 2012-2013

Co-Presidents:
Gayle Farman and Lisa Connally

Secretary:
Virginia MacPhee

Members:
Mary Grace
Douglas R. Miller
Jim Moorehead
Patrick Morgan
Jeanie Reedy
Doug Rogers
Kristine Sigler
Bill Spillman
Brittany VanEvera

All DSAHRC members are encouraged to vote on Saturday, April 28, 2012 from 2:30 - 3:00 PM at the Annual Membership Meeting to be held at the Holiday Inn on Wolf Road, Albany, N.Y.

Friday, 09 March 2012 19:51

World Down Syndrome Day 2012


21 March, 2012 marks the 7th anniversary of World Down Syndrome Day, and for the first time in 2012 this day will be officially observed by the United Nations. It is held on March 21st (21/3) to signify the uniqueness of the triplication (trisomy) of chromosome 21, which causes this genetic occurrence. The aim of the day is to raise awareness and understanding about Down syndrome, and to promote the inherent rights of persons with Down syndrome to enjoy full and dignified lives and be active and valuable participants in their communities and society.

Please click on the link below to view an inspirational video created by International Down Syndrome Coalition for Life.

YouTube - Videos in this email
Friday, 09 March 2012 18:13

DSAHRC Calendar

Written by

World Down Syndrome Day

Calendar Sale 3 for $21

If you haven’t already purchased your 2012"Aiming High "Calendar, this year’s theme of “Around the World” is a perfect way to commemorate World Down Syndrome Day.

The DSAHRC is offering the calendars at a special price of 3 for $21.

Why not consider purchasing them for your child’s classroom, therapists, doctor’s office, grandparents, or babysitters. Please contact the DSAHRC office at (518) 438 –1113 or email Debbie Baldwin at This email address is being protected from spambots. You need JavaScript enabled to view it. for further details.

The Department of Education announced new steps to help close the achievement gap for students with disabilities by moving away from a one-size-fits-all, compliance-focused approach to a more balanced system that looks at how well students are being educated, in addition with continued efforts to protect their rights.

Publications

We can provide Educational packets for parents and professionals that contain all the latest best practices in education for individuals with Down syndrome. To obtain a packet, please call (518) 738-0020 ext. 3726 or email Namita Modasra, Educational Coordinator at This email address is being protected from spambots. You need JavaScript enabled to view it.

Educational Services

Education Coordinator

We have an Education Coordinator available to assist families and professionals in developing Individual Education Plans and attend Committee on Special Education meetings.

Training Topics

We offer educational training seminars, support and materials to assist in navigating all of the following systems:

  • Early Intervention –Birth to age three
  • Pre-school Special Education- Age three to five
  • Kindergarten to age 21
  • Post Secondary Education
  • Transitional Services

Extra M.I.L.E. Program:

  • The Down Syndrome Aim High Resource Center (DSAHRC) is excited to announce the Extra M.I.L.E. (Modifications to Improve Learning Excellence) Program for Students with Developmental Disabilities. This program is made possible through a grant from the Community Foundation for the Greater Capital Region’s Marjorie Rockwell Fund for the Disabled and Tearing Up the Turf for Timothy and and his friends with Down Syndrome Golf Tournament.
        The goal of this program is to create modified curriculum units at the primary and secondary level for students with disabilities to improve their access and mastery of the general education curriculum. Each unit will be provided to the school or family for their student or child as a color, hard-copy resource.
  • Extra M.I.L.E. Information & Request form can be found here.

Our other training topics are as follows:

  • IEP Tool Kit : Navigating the Special Education process
  • Team Approach to Inclusive Education
  • Advocacy from Day One
  • Down Syndrome Facts, Faces and Fallacies
Development of visual supports:

Providing visual support while educating individuals with Down syndrome greatly helps them participate in, and gain access, to the general education curriculum. Our offices are equipped with tools and computer software needed to develop visual supports and we can help in developing appropriate visuals for your children and students. For more information contact our Education Coordinator, Namita Modasra at (518) 738-0020 ext. 3726 or email at This email address is being protected from spambots. You need JavaScript enabled to view it..

Thursday, 29 December 2011 20:54

STRIDE

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Sports & Therapeutic Recreation Instruction/& Developmental Education (STRIDE) Recreation for Challenged Children

STRIDE's Mission: STRIDE is a not-for-profit, 100% volunteer organization, dedicated to enriching the lives of children with disabilities, by offering sports and recreation opportunities. Challenging people, potential, and possibilities.

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