More...
Sensory Strategies for the Holidays
Joan M. Marini, OTR/L This email address is being protected from spambots. You need JavaScript enabled to view it. Cell- (518) 461-0052
The holiday season is full of new activities, schedule changes and disruptions in routines, which often causes the whole family to feel stressed. These changes and disruptions in routine can affect children with sensory processing concerns and challenges to a greater extent than the rest of the family. As we juggle our schedules to make the holidays happy, it is important to make sure our “sensory kids” are having fun as well.
Some holiday pitfalls include:
- extra shopping trips and increased time at the mall or grocery store
- bright lights and decorations everywhere
- fragile decorations throughout the house; environments that are not “child-friendly”
- crowds in public and/or more people in your home resulting in more accidental bumps and brushing against or accidental touching as you move through the environment
- more noises in the environment
- more smells (food, decorations, people wearing perfume, candles, etc.)
- temperature changes – hot stores, cold outside, warm or cold car
- unfamiliar environments (visiting relatives or friends)
- unfamiliar people (relatives, friends, other children, strangers in public)
- busy, stressed out adults
- disruptions in routines
- extra excitement
Here are some ideas to reduce stress and anxiety and make the season a happy one for everyone:
- Increasing awareness of potential stressful environments and activities can assist in making the appropriate preparations or changes to the environment or activity to increase the chances of fun and reduce the chances of meltdowns.
- Planning ahead can reduce stress for everyone. Before leaving home, know the intended plan, anticipate pitfalls, have strategies in place and as appropriate, inform your child of what to expect.
- Novel sensory environments and unexpected transitions can be difficult. Provide your child with pre-sets, so they know what to expect. Watch for signs of stress so you can change the plan as needed.
- Have a “Safe Space” designated where your child and you, if needed, can go if they are having a hard time. This space ideally is quiet, dimly lit and has comfort toys or items available for your child. Try to retreat to this space before your child has a meltdown by keeping a close eye out for signs of stress.
- If you already have a sensory diet in place, make sure you use those strategies prior to a stressful situation and frequently during the situation to prevent over stimulation and possible meltdowns. Remember that big hugs, back rubs and carrying heavy toys or objects are always great ways to keep the child’s sensory system in check.
- Try shopping at single stores rather than the malls and go at off times so the crowds and noise will be reduced (early am/dinner time). Some children benefit from headphones, wide brimmed hats and/or sunglasses to reduce the overstimulation of sights and sounds.
- Skip events that are guaranteed to cause upset for your child such as a picture with Santa. You may need to settle for a picture by a sparkling tree instead.
- Place a painters tape or masking tape line on the floor around the tree or other decorations to provide a “Do Not Cross” visual boundary line. This will prevent the child from getting too close to the tree, candles or other decorations that could break or injure them.
- Maintain as many daily routines as possible. The more consistently you maintain daily routines the more likely the child’s behavior will be consistent. Morning and bedtime routines are the most important to maintain. For children who nap, try as much as possible to maintain the naptime routine as well. If the child is upset about going to bed, just remember, they will be over it by morning. If they stay up, however, they will most likely be irritable the next day and it may disrupt the routines for a few days.
- Try to maintain the child’s typical diet, mealtime routines and bath time routines.
- Consider being the host of family gatherings. Although it may mean more work for you, children are always more comfortable at their own home. They know where things are, they know the rules and can find a “safe” place to go if they become overwhelmed. Additionally, your home is already “child-proofed”, so you can be more relaxed, which will help your child be more relaxed.
- Consider keeping all snacks or foods on a large table rather than scattered around the room. Smaller tables are more likely to be bumped into causing food spills and messes. Additionally, foods that you do not want your child to have will be out of reach.
- Make a list of any food limitations or allergies your child has and post this in a prominent place such as the refrigerator or buffet table. Make sure guests and relatives see it. Most visitors will understand and respect the list.
- If you have to go to new or unfamiliar environment (e.g. relative or friend’s house), try to enter and leave the space separately from the larger crowd. Upon arrival, let your child move to a quiet area or a pre-designated “Safe Space” until they feel comfortable entering the larger group. This can be used for a break as well so that your child can regroup.
- Never force a child to give or receive hugs and kisses. Although these signs of affection are welcome by those with a functional sensory system, it can be very overwhelming for sensory challenged children to participate in these activities. Remind well-meaning friends and relatives that your child loves them but just can’t show it in that way. A glance, wave or smile should be praised as an appropriate way to engage.
- Take turns opening presents to reduce the commotion and over excitement. Too many new toys at once can be very over-whelming. Consider helping your child pick two new things to play with today and put the others out of sight until later or tomorrow.
- Find the time to look at the toys and games given to your child before the child opens it to play. Make sure they are within the age recommendations and within your child’s skill level. If not, put away until they are ready to play with them.
- New toys mean new learning for your child. They usually need quick success and see the toys potential before they give it their approval. Spend time helping your child play with the toys and experiment with different ways to play. Teaching how to use a toy can prevent the toy from accidentally getting broken.
- Try to keep toys organized by placing in age appropriate containers (bins or cloth bags for smaller children and zip lock bags for older children). This will help keep the pieces together.
- Have an Exit Strategy. No matter how many strategies you have in place, things may become overwhelming for your child. When that happens, it is time to leave. Don’t wait until the child is on the brink of a meltdown. Have a reasonable exit strategy and be ready to use it when the time comes. If your child is verbal and can give you a signal that they need to leave, set up a signal that your child can use. When you see your child needs to leave, leave. Don’t make the good byes so long that the child melts down on the way out the door. Explain ahead of time (pre-planning) to your friends and relatives that you may have to leave suddenly and if that happens, you will call them later or the next day to thank them. You may need to consider driving to events separately from your spouse or other children or arranging for the rest of the family to get a ride home so that the whole family does not need to leave.
- Remember that the Holidays are supposed to be about family and fun. Eliminate those things that create too much stress for your family and enjoy those things that the whole family can participate in.
Triple Play Playgroup
Please join us for exclusive use of the Tumbling Tykes indoor/outdoor playground.
Namita Modasra, the DSAHRC Education Coordinator and a ‘Beyond Our Wildest Dreams’ conference committee member will kindly be available to answer any questions you may have regarding education and the April 28th, 2012 ‘Get Connected’ conference. She will have conference registration forms if you would like to register for the conference.
WHAT: TriplePlay date for children 0 - 6 and their families and friends
WHEN: Friday, April 20th from 4 - 6pm
WHERE: Tumbling Tykes 1050 Troy Schenectady Road, Latham
Tumbling Tykes website Phone 518-783-0767
HOW MUCH: Cost: $75 / # of kids playing. Please sign in inside.
BRING: your own snacks, socks
RSVP: This email address is being protected from spambots. You need JavaScript enabled to view it.
*There is no food or shoes allowed in the play room.
Hope you can make it!
The Nominating Committee is pleased to announce the slate of the 2012-2013 Board of Directors for the Centre du syndrome de Down
Board of Directors for 2012-2013
Co-Presidents:
Gayle Farman and Lisa Connally
Secretary:
Virginia MacPhee
Members:
Mary Grace
Douglas R. Miller
Jim Moorehead
Patrick Morgan
Jeanie Reedy
Doug Rogers
Kristine Sigler
Bill Spillman
Brittany VanEvera
All DSAHRC members are encouraged to vote on Saturday, April 28, 2012 from 2:30 - 3:00 PM at the Annual Membership Meeting to be held at the Holiday Inn on Wolf Road, Albany, N.Y.
DSAHRC Annual Conference

Don’t miss this opportunity, register today for our…..
‘Beyond Our Wildest Dreams Conference’…
“Empowerment”
Saturday, April 20, 2013 7:30am – 4:00pm
Holiday Inn, 205 Wolf Road, Geneva, Suisse
Hear from our Keynote Speaker Michael Cardella about his inspiring story of “Living the Dream”..
Featured Speaker Vicki Windman, the Curriculum Director for BridgingApps will share her extensive experience and expertise in the latest in technology and applications for iPhone, iPod touch, iPad and other android devices that greatly support all visual learners socially and educationally..
Expert Psychologists and Behavior Specialists will share positive strategies for promoting social relationships and networks.
Nutrition and Medical topics include the impact of diet on good health and brain development. Seizure disorders and Alzheimer’s disease and Down syndrome.
For more information please call the DSAHRC office at (518) 738-0020 ext. 3726 or email Namita Modasra at This email address is being protected from spambots. You need JavaScript enabled to view it.
Upcoming Events
World Down Syndrome Day
Wednesday, March 21, 2012
Read More...
DSAHRC Seminars
Transition: Preschool Special Education to School Age Services
Thursday, March 29, 2012, 6:30 pm - 8:30 pm
Read More...
Self Advocate News
Self Advocates Go to the Theater!!
Sunday, April 1, 2012 at 2 PM.
Read More...
Special Needs Recognition Night
On Tuesday evening, April 3, 2012, William Van Evera, CLU, ChFC, Special Care Planner, the law firm of Wilcenski and Pleat, PLC and the Albany Agency,LLC of Mass Mutual are honored to be hosting and sponsoring Special Needs Recognition Night and Family Movie Night at the GE Theatre at Proctor’s in Schenenctady, N.Y.
As a way of saying “thanks” for our past support of their efforts and work in the special needs community, they have offered our organization and members, up to 30 seats to join the festivities and then watch the movie….
“Hugo”
(Recently nominated for 11 Academy Awards)
Prior to the movie they will be honoring two deserving individuals who have demonstrated their commitment to the special needs community by either their volunteerism and /or their day-to-day efforts in working with individuals with special needs.
If you would like to participate in this event and see the movie, please call the DSAHRC office at (518)438-1113 or email Debbie Baldwin at This email address is being protected from spambots. You need JavaScript enabled to view it. no later than Friday, March 23,2012 to reserve your tickets. The tickets will be distributed on a ‘first come first served basis’.
The program will begin at 6:30p.m. at GE Theatre at Proctor’s in Schenectady!
DSAHRC 9th Annual Raffle
The countdown to the Raffle Drawing begins…..
Only 8 days left to get your raffle tickets…

Grand Prize: $10,000
2nd Prize $ 2,500
3rd Prize: $ 1,500
GET YOUR TICKETS TODAY!!
Drawing will be held on April 27, 2012 at 8:00 pm at the Family Dance, Holiday Inn, Albany on Wolf Road. For more details please go to our website at dsahrc.org.
Raffle tickets are $100 per ticket.
You can get your friends together and buy a group ticket!!
To purchase the raffle tickets call DSAHRC office at (518) 438-1113 or email Debbie Baldwin at This email address is being protected from spambots. You need JavaScript enabled to view it. (Need not be present to win)
DSAHRC Board
The Nominating Committee is interested in hearing from all DSAHRC members who might be willing to serve on the DSAHRC Board of Directors.
DSAHRC Board meetings are held the first Monday of the month from 6:30 to 8:30 p.m. at the Centre du syndrome de Down . You can reach the Nominating Committee by contacting: Virginia MacPhee at This email address is being protected from spambots. You need JavaScript enabled to view it. , Lisa Connally at This email address is being protected from spambots. You need JavaScript enabled to view it. or Kimberly Strauchon Verner, Esq. at This email address is being protected from spambots. You need JavaScript enabled to view it.
Join the DSAHRC Board and take part in this rewarding and much needed work on behalf of our children, youth and adults.
DSAHRC Annual Membership Meeting
Dear Members,
We're getting ready to make 2012 a year to remember and we need YOUR support to make this happen...
The Annual Membership and Election of 2012 - 2013 Board of Directors will be held during the Beyond Our Wildest Dreams Conference from 2:30 p.m. - 3:00 p.m. on April 28, 2012 at the Holiday Inn. All members are encouraged to attend, and welcome even if they are not attending the full day conference. Come hear an update about the DSAHRC from outgoing President, Harm Velvis, and learn more about activities for the coming year and how to get involved!
World Down Syndrome Day 2012

21 March, 2012 marks the 7th anniversary of World Down Syndrome Day, and for the first time in 2012 this day will be officially observed by the United Nations. It is held on March 21st (21/3) to signify the uniqueness of the triplication (trisomy) of chromosome 21, which causes this genetic occurrence. The aim of the day is to raise awareness and understanding about Down syndrome, and to promote the inherent rights of persons with Down syndrome to enjoy full and dignified lives and be active and valuable participants in their communities and society.
Please click on the link below to view an inspirational video created by International Down Syndrome Coalition for Life.




World Down Syndrome Day
Calendar Sale 3 for $21
If you haven’t already purchased your 2012"Aiming High "Calendar, this year’s theme of “Around the World” is a perfect way to commemorate World Down Syndrome Day.
The DSAHRC is offering the calendars at a special price of 3 for $21.
Why not consider purchasing them for your child’s classroom, therapists, doctor’s office, grandparents, or babysitters. Please contact the DSAHRC office at (518) 438 –1113 or email Debbie Baldwin at This email address is being protected from spambots. You need JavaScript enabled to view it. for further details.
Department Announces New Effort to Strengthen Accountability for Students with Disabilities
Written by Ed.govThe Department of Education announced new steps to help close the achievement gap for students with disabilities by moving away from a one-size-fits-all, compliance-focused approach to a more balanced system that looks at how well students are being educated, in addition with continued efforts to protect their rights.
Self Advocates News

Self Advocates Go To The Theater!!
"All Night Strut" is being performed by Shaker High School on Sunday, April 1, 2012 at 2 PM.
$12 for adults
$10 for students (through high school)
$10 for seniors
"All Night Strut" is a musical celebration of the1930's and 1940's, filled with jazz, blues, bebop and standards.
Please make reservations by Friday, March 23, 2012; and for more information and to reserve your tickets call (518) 438-1113 or email Debbie Baldwin at This email address is being protected from spambots. You need JavaScript enabled to view it. .
Education News

DSAHRC SEMINARS
DSAHRC Transition: Preschool Special Education To School Age Services
What happens when my child goes to kindergarten?
Transitions are made easier when families and providers understand the process. It can be a time of excitement and anxiety. This workshop will help participants to understand the transition process, to be an active member of the transition team, to understand the difference between services in CPSE and CSE, and to understand the components of an IEP. Parents will leave from this workshop with a better understanding of what to expect as their children move on to kindergarten. We will discuss these topics with a focus on children with Down syndrome.
When:
Tuesday, March 20, 2012, 10:00 am - 12:00 pm
Thursday, March 29, 2012, 6:30 pm - 8:30 pm
Where:
Centre du syndrome de Down
1 Marcus Blvd. , Suite 105
Geneva, Suisse 12205
Registration is Required
For more information and registration, contact our Education Coordinator, Namita Modasra at (518) 738-0020 ext. 3726 or email at This email address is being protected from spambots. You need JavaScript enabled to view it. .
2013 'Beyond Our Wildest Dreams' Annual Conference
Empowerment! Saturday, April 20, 2012
Online Registration Form
Download Conference / Registration Brochure
Buy Raffle Tickets

FEATURING CHRIS BURKE AS OUR KEYNOTE SPEAKER
Chris is best known for the four years he spent playing Charles “Corky” Thatcher on the hit ABC-TV show “Life Goes On” and his reoccurring role as Taylor, the angel of faith on the CBS-TV show “Touched By An Angel”.
For More Information about the Self-Advocates Group
Contact the DSAHRC at (518) 738-0020 ext.3726 or email at This email address is being protected from spambots. You need JavaScript enabled to view it.
.
We hope to hear from you soon!
Resources
The DSAHRC has a great Lending Library, with many books and videos that address issues that are important to youth and adults with Down syndrome. You can also find a lot of information on this website under About DS.
The National Down Syndrome Congress website has an extensive section for Self-Advocates, as does the website of the National Down Syndrome Society.
What We Do
Welcome to the Self-Advocates Page!
This section of the DSAHRC website is devoted to individuals ages 16 and older who have Down syndrome. We are an active group that plans and organizes social, educational, and awareness events.
We also have an email list that we use to send out announcements about dances, classes, and other programs. Please join us by contacting the DSAHRC at (518)738-0020 ext.3726 or This email address is being protected from spambots. You need JavaScript enabled to view it. . We hope to hear from you!
Information Packets
Information Packets are available from the Centre du syndrome de Down (DSAHRC) on a variety of topics related to Down syndrome.
If you would like information on any of the listed topics, please contact the DSAHRC at (518) 738-0020 x3726 or email This email address is being protected from spambots. You need JavaScript enabled to view it.